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Have You Thanked an Infor­mal Care­giv­er Lately?

By: Kath­leen Bol­ger, KYC Care­giv­er Specialist

Infor­mal care­givers are your fam­i­ly, friends, and neigh­bors who help those who need assis­tance, with­out get­ting paid for it. In 2025, 59 mil­lion peo­ple cared for an adult with a com­plex med­ical con­di­tion or dis­abil­i­ty, an increase of a whop­ping 48% over the last ten years! Infor­mal care­givers are heroes who pro­vide care, often at sig­nif­i­cant finan­cial and per­son­al cost, and they deserve our thanks. 

Here’s why:

Infor­mal care­givers save us money.

The val­ue of their work in 2025 is $1.1 tril­lion annu­al­ly. If infor­mal care­givers did not pro­vide this help, those who need assis­tance would like­ly be cared for in a facil­i­ty, poten­tial­ly at tax­pay­er expense.

Infor­mal care­giv­ing is time consuming.

About 25% of infor­mal care­givers give 40 hours or more per week of unpaid care, and 35% pro­vide more than 20 hours per week of care.

Infor­mal care­giv­ing neg­a­tive­ly impacts paid work.

1

Sev­en­ty per­cent of work­ing-aged care­givers are employed in addi­tion to doing infor­mal care­giv­ing. Most are paid hourly, and may not have work ben­e­fits like paid time off and flex­i­ble sched­ules that would help them pro­vide infor­mal care. Many infor­mal care­givers who are employed take leaves of absence, reduce full time to part-time work, have turned down a pro­mo­tion, and/​or received a warn­ing about job per­for­mance or attendance.

Infor­mal care­givers expe­ri­ence finan­cial strain.

About twen­ty per­cent of infor­mal care­givers report high finan­cial strain. Many stop sav­ing, dip into retire­ment sav­ings, or bor­row mon­ey from friends or fam­i­ly to assist the per­son they care for.

Infor­mal care­giv­ing impacts phys­i­cal and men­tal health.

Almost twen­ty-five per­cent of infor­mal care­givers had dif­fi­cul­ty car­ing for them­selves; twen­ty per­cent report their health as fair” or poor”. About half report­ed that they have a sense of pur­pose and ful­fill­ment in pro­vid­ing unpaid care, while thir­ty-eight per­cent report­ed high emo­tion­al stress, and twen­ty-four per­cent report­ed feel­ing iso­lat­ed. Feel­ings of stress, depres­sion, and being over­whelmed are nor­mal for infor­mal care­givers. Feel­ings like these can make it dif­fi­cult for care­givers to find ful­fill­ment and pur­pose in their work. But, research sug­gests that care­giv­er train­ing can low­er care­giv­er stress, anx­i­ety, and depres­sion. When care­givers feel more com­pe­tent, in con­trol, and con­fi­dent in their role, they tend to report low­er lev­els of stress and depression.

Infor­mal care­giv­ing requires training.

2

Infor­mal care­givers increas­ing­ly assist with incon­ti­nence, dress­ing, bathing, and stand­ing and/​or walk­ing – activ­i­ties that increase the like­li­hood of injury if not done prop­er­ly. Those who care for peo­ple liv­ing with demen­tia must man­age their own stress reac­tions as well as those of the per­son they’re car­ing for. Yet only 11 per­cent of care­givers receive the kind of train­ing that helps to reduce injury and devel­op care­giv­er con­fi­dence and mastery. 

How KYC Can Help

Our mis­sion at the KYC Care­giv­er Resource Cen­ter is to help infor­mal care­givers man­age the com­plex­i­ties of care­giv­ing. Whether it’s pro­vid­ing resources, skill devel­op­ment, plan­ning for the future, host­ing care­giv­er sup­port groups, or help­ing care­givers get a break from care­giv­ing – we are here to accom­pa­ny infor­mal care­givers as they do this crit­i­cal and life-chang­ing work. Please click here to learn more about our ser­vices.

And, stay tuned for an upcom­ing post about the impor­tance of self care, and the class­es KYC offers specif­i­cal­ly for infor­mal caregivers. 

How You Can Help

3

If you know an infor­mal care­giv­er, send them a note or card of recog­ni­tion for all they do, and thank them. Offer to do their shop­ping the next time you’re head­ed to the gro­cery store. Offer to fill in for 3 hours each month, to give the care­giv­er a break. Call and ask the care­giv­er how they’re doing. Take a class for care­givers to learn the skills that will help you to help an infor­mal care­giv­er. Con­tact KYC for more ways you can help. 

Sources

https://​nation​al​part​ner​ship​.org/​n​e​w​s​_​p​o​s​t​/​u​n​p​a​i​d​-​c​a​r​e​g​i​v​i​n​g​-​v​a​l​u​e​d​-​a​t​-​m​o​r​e​-​t​h​a​n​-​1​-​t​r​i​l​l​i​o​n​-​p​e​r​-​n​e​w​-​a​n​a​l​ysis/

https://​www​.aarp​.org/​c​o​n​t​e​n​t​/​d​a​m​/​a​a​r​p​/​p​p​i​/​t​o​p​i​c​s​/​l​t​s​s​/​f​a​m​i​l​y​-​c​a​r​e​g​i​v​i​n​g​/​c​a​r​e​g​i​v​i​n​g​-​i​n​-​u​s​-​2025​.​d​o​i​.​10​.​26419 – 2fppi.00373.001.pdf

https://​pubmed​.ncbi​.nlm​.nih​.gov/​36068999/

https://​pmc​.ncbi​.nlm​.nih​.gov/​a​r​t​i​c​l​e​s​/​P​M​C​6302747/

The rela­tion­ship of care­giv­er self-effi­ca­cy to care­giv­er out­comes: a cor­re­la­tion and medi­a­tion analy­sis — PubMed

Effec­tive­ness of edu­ca­tion­al inter­ven­tions for infor­mal care­givers of indi­vid­u­als with demen­tia resid­ing in the com­mu­ni­ty: sys­tem­at­ic review and meta-analy­sis of ran­domised con­trolled tri­als — PubMed

Rela­tion­ship between Mas­tery and Care­giv­ing Com­pe­tence in Pro­tect­ing against Bur­den, Anx­i­ety and Depres­sion among Care­givers of Frail Old­er Adults — PubMed

Reduc­ing the bur­den and strain on infor­mal stroke care­givers : a sys­tem­at­ic review and meta-analy­sis — West­ern Syd­ney University


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